Remembering Everyone Matters In Dementia
A Dementia Friendly Community around the Erme
Events to help all feel involved
About Erme Remind
Erme-Remind is a two year collaborative project involving Ermington and several other parishes in the Erme Valley. The aim of the project is to develop a dementia friendly community, which is one that shows a high level of public awareness and understanding so that people living with dementia and their carers/families are encouraged to seek help and are supported by those around them. It is a community which helps those with dementia to improve their ability to remain independent and have choice and control over their own lives. Dementia can be scary for those who have not got the condition. Imagine what it is like for those who find that they have and for those who care for them.
Our little project is part of the national dementia friendly communities programme, which was launched in March 2012 as part of the ‘Prime Minister’s Challenge’ on dementia and is supported by the Dept. of Health. The PM chairs a national planning group for this campaign. They hope to give recognition and support to local communities, villages, towns and cities, who are trying to be more inclusive of people with dementia. There are other projects around locally as well as ourselves.
The parishes involved in the project include Ermington, Kingston, Modbury and Ugborough, with Modbury serving as the lead parish. The project was inspired by the Dementia Friendly Parishes around the Yealm project and by the work of Francis Reeve – town councillor and former Mayor of Ivybridge.
Our Project Action Plan is here Dementia-Action-Plan13-14. You will also find a Dementia Questionnaire which we are using to help us develop our understanding of needs. There are sections for everyone to complete, plus a section for carers and families as well as a section for someone living with dementia. Please complete it and send it onto the Parish Clerk.
What is dementia?
The term dementia describes a range of symptoms which include loss of memory, mood changes and problems with communication and reasoning. The condition is progressive, that is the symptoms get worse; how fast depends on the individual person and the type of dementia they have. It is a complex condition and each case is different.
Why should we be concerned?
1 in 3 people over 65years of age will die of dementia, but 17,000 people with dementia are younger than 65; by 2021 one million people will have the condition, currently there are 800,000 in the UK. Two thirds of people with dementia live in the community, only one third live in a care home. 64% of people in care homes have dementia.
Dementia cost the UK over 23 billion pounds in 2012, but family carers of those with dementia save the UK 8 billion a year. The south west has the highest dementia rate in England, around 12,000 have the condition in Devon alone and this is expected to rise to 17,000 by 2021. Devon is already at the point that the UK as a whole is expected to reach in 2025.
What causes dementia?
Several diseases and conditions result in dementia, but you are most likely to have heard of Alzheimer’s Disease, which is the commonest cause. Vascular dementia is caused by a break in oxygen supply to the brain from a stroke or accident, and Dementia with Lewy Bodies is where tiny abnormal structures develop inside brain cells causing problems with planning and reasoning rather than memory loss. There are many others and most are not curable, though there are now some drugs which give temporary alleviation for some types of dementia. All this has lead to the national campaign, of which we are a small part, to raise awareness, understanding and offer more support to people living with dementia and their families.
National Dementia Helpline 0845 300 0336
http://www.alzheimers.org.uk/ There are local branches of this organisation.
Dementia UK Uniting Carers at http://www.dementia.org/ lots of information on dementia
email:email@example.com – useful if you are caring for someone or have a relative with dementia.
The Silver Line Helpline 0800 328 8888 a helpline for older people.
More information can be found at www.thesilverline.org.uk/
http://www.purpleangel.org.uk/ the purple angel is the symbol of hope adopted around the world by people who care about dementia, see above.
http://www.devoncarersvoice.org.uk/ for carers to encourage more carers to have a say in decisions which affect them and those they care for
We are building up our list of useful contacts all the time – please don’t hesitate to contact us for more. Also, you may want to attend one of the training events that we organise. Just contact us through the people listed below.
A few of the many tips for supporting someone you meet who you know or suspect has dementia …….
? Show respect and patience
? Make sure the person can see you and use the person’s name if they are known to you
? Speak clearly and calmly and slightly slower than usual, and re phrase questions which have been
? Ignore mistakes and show respect and patience.
So how about you?
If you feel you could help in anyway, we would love to hear from you. You may just want to tell us that you have spoken to your community group or business to tell them about this project. If you should take any action as a result of reading this page please let us know. It helps us to build up our evidence of change.
Thank you for your interest!
The information on this page comes from the Alzheimer’s Society